NHS England
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Young people want control over consent, confidentiality and comment

Rowan Munson and Amy Frounks, members of the NHS Youth Forum, share details of the latest campaign they plan to launch at Expo 2015:

At our first NHS Youth Forum residential in 2014 we pinpointed the fact that health care rights were not often explained to young people.

Consequently they had conflicting information around important issues relating to Consent, Confidentiality, Comments and Complaints, or giving feedback about the services that they receive.

Confidentiality, consent and feedback are vital elements to every individual’s health care, including children and young people.

Just like adults, we want to make decisions for ourselves so it is vital that we are aware of our rights, especially in relation to these three areas.

If these aren’t understood, barriers can be created, limiting access to services, and resulting in a poorer experience of care. Whilst children and young people don’t have quite as much life experience, we still have valid rights, we have opinions and feelings and we deserve the opportunity to be listened to and have that feedback acted on.

Amy says: “When I eventually realised I had a right to confidentiality and was of the age and competency level where my parents didn’t have to be involved in all my appointments, and didn’t have to know the ins and outs of every conversation (especially in mental health services), I felt more comfortable to express my thoughts and was able to progress more and achieve better outcomes.

Rowan adds: “Knowing my rights around accessing my records meant I felt able to ask for my GP and Hospital records during a period of painful illness. During this time I was referred and self-referred into various primary and secondary care services. The records I kept avoided me having to explain things over and over again – which was a challenge in itself when you’re in that much pain! It also meant that doctors could discount possible diagnoses and not have to repeat tests, saving money too. If I hadn’t known that I could request my records, I wouldn’t have asked for them.”

We’re incredibly pleased the NHS Youth Forum was able to address these three areas and we have developed a set of posters and a leaflet about these issues which you will be able to see at Expo 2015.

We hope the information is clear and in language that is accessible to other young people so they can be aware of their rights and responsibilities. There is an audio and an easy read version of the information too.

We firmly believe that by promoting young people’s rights it empowers us to take ownership and responsibility for our health and care. As young people we can proactively seek out the best services to treat us, and become more confident in talking to healthcare professionals, helping professionals to do their job better and improve outcomes and experience.

We hope these simple posters, written by young people for young people, will help others achieve better outcomes and make experiences within the NHS as good as they can be.

Will you help us? Please print and display the posters in your areas for young people to see, and why not share this blog and links with colleagues too? Thanks!

  • You can find out more about our work by following us on Twitter@NHSYouthForum Importantly, we don’t just talk about improving things, we get on with it and we’re really excited to share our latest campaign.

 

Image of Rowan MunsonRowan Munson

Rowan is committed to making sure young people are heard in healthcare issues. For six years he has represented young people, locally at the district and county councils, Patient Participation Groups & his Clinical Commissioning Group, including founding Surrey’s youth representation platform.

He says his interest in health issues started after he was ping-ponged through several departments, in several organisations.

After the publication of the Chief Medical Officer’s “Prevention Pays – Our Children Deserve Better” report, he took up the mandate to ensure that services meet the needs of young people.

He is looking forward to helping put young patients at the heart of services for children and young people.

 

Image of Amy FrounksAmy Frounks

Amy is an 18-year-old college student from Taunton and equally dedicated to studying as she is to wheelchair tennis and youth voice opportunities.

She is interested in promoting the views of young people within health care which is why she is involved in many different volunteering opportunities surrounding health and young people.

Amy is a member of ‘Young CDC’ (a young advisory group for the ‘Council for Disabled Children’), part of ‘NHS England’s CYP rehabilitation working group’ and is involved in some work with the organisation ‘Common Room.’

She is also part of her local CAMHS service, a young steering group for Advocacy in Somerset and more recently a Somerset Well-being Champion. She thrives off working with other young people to create such positive change.

 

Channel website: https://www.england.nhs.uk/

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Latest News from
NHS England

NHS rolls out discreet home-testing kits against cervical cancer for millions of women

25/08/2026 13:10:00

Nearly 4 million women will be offered HPV self-testing kits if they have not attended cervical screening appointments following invitations from the NHS in England.

The NHS is starting to roll out the new self-testing kits from today to encourage more women to complete their potentially lifesaving screening to detect human papillomavirus (HPV), which can increase the risk of cervical cancer.

England’s leading women’s health doctor described the move as a “gamechanger” given that around a third of those eligible aren’t up to date with their cervical screening, and this test provides a more “discreet and convenient option” for them.

The self-testing kit contains a swab, similar to a long cotton bud, which is used to collect a sample from the vagina. The sample is then posted back to the NHS for free, where it is checked for high-risk HPV.

If high-risk HPV is found, individuals will be invited to book a follow-up cervical screening appointment at their GP surgery or sexual health clinic, where a nurse or doctor will take a small sample from the cervix to check for cell changes.

Cervical screening helps prevent cervical cancer by checking for high-risk types of HPV. It is a common virus that can cause changes to cells in the cervix. These changes can usually be treated before cancer develops.

Women who are eligible will start receiving invitations today via the NHS App, text message, email or letter, and once invited they will be able to order a free kit through the NHS App or their NHS online account.

This is the next major step the NHS is taking in its pledge to eliminate cervical cancer by 2040, by making it as easy as possible for people to get the lifesaving HPV vaccination and increasing cervical screening attendance.

Dr Sue Mann, National Clinical Director for Women’s Health at NHS England, said: “Screening saves thousands of lives each year by preventing cancers and catching them earlier, but only around two-thirds of women are attending cervical screening appointments when invited by the NHS.

“Offering millions of women an alternative test they can do from the comfort of their own homes will be a gamechanger – making it easier than ever for them to get tested for HPV. 

“There are lots of reasons that may stop women from getting their cervical screening – embarrassment, lack of time, or worries about discomfort – and these kits provide a discreet and convenient option we hope will encourage more women to take up the life-saving test. 

“So, if you’re invited to take part, please order a test – it’s a simple swab you can do at home in minutes.”

Cervical screening appointments with a clinician remain the best way to help prevent cervical cancer, but HPV self-testing is being introduced by the NHS as an additional choice for people who have not taken up previous invitations.

HPV self-testing is an invitation-only offer and is being rolled out in phases across England as part of the NHS Cervical Screening Programme, starting with those aged between 30 and 65, who have not attended cervical screening following previous invitations.

The national rollout comes on the back of the YouScreen trial run by North London cancer alliances in collaboration with NHS England and King’s College London in 2021, which found offering self-testing kits to under-screened women at their GP practice or at home could boost the numbers screened in England by about 400,000 each year.

The UK National Screening Committee used evidence from this trial in its recommendation to roll this out wider.

The latest figures show that 68.8% of eligible women were up to date with their cervical screening – below the NHS England target of 80%. This means around 4 million women in England are not up to date with their routine check-up.

Women aged 24-64 are invited for cervical screening by the NHS every five years, or more frequently if HPV is detected.

Anyone who has been invited for cervical screening can still book an appointment at any time, even if the invitation was sent months or years ago.

It is still important to attend cervical screening appointments if you have been vaccinated against HPV as the vaccine does not provide protection from all types of HPV, so there is a still a small chance of getting cervical cancer.

People who routinely attend for a cervical screening test with a clinician at their GP practice or sexual health clinic should continue to book their appointments as normal.

Health and Social Care Secretary Yvette Cooper said: “Cervical cancer is preventable – but that’s why we want to make it as easy and convenient as possible for women to keep up with their screening.

“These free self-testing kits will be offered to four million women who are currently behind on their screening to make it easier for as many women as possible to keep themselves healthy and safe.

“This is the future NHS we are building – there for all of us when we need it, and acting as early as possible to stop preventable deaths.”

Cancer Research UK’s Chief Executive, Michelle Mitchell, said: “Cervical screening is a powerful tool that saves lives – it can prevent cervical cancer or spot it at an earlier stage when treatment is more likely to be successful. 

“While it’s best for cervical screening to be done by a nurse or doctor, there are barriers that make it challenging for some people to attend. At-home HPV self-testing kits will help more people take part in a way that works for them.

“If people receive their cervical screening or self-testing kit invitation, please consider taking up the offer and encourage loved ones to do the same. Beating cervical cancer means beating it for everyone, and this move brings us closer to that goal.”

Athena Lamnisos, Chief Executive Officer at The Eve Appeal, said: “There are many reasons why those eligible for cervical screening don’t attend.

“Challenges around the type of test it is, limited awareness around HPV and its role in cancer development, as well as practical barriers such as problems around booking and attending an appointment, stop many from going.

“Cervical screening is designed to prevent cervical cancer rather than respond to symptoms, attending a clinic requires people to actively prioritise an appointment among the many competing demands of everyday life.

“Self-testing which can be done at home will be a step-change for many. We have the incredible opportunity to see the back of cervical cancer. How brilliant would that be? But to achieve this, we need to support everyone eligible to attend screening.

“At Eve we welcome the rollout of this programme and its focus on the audiences who need it most in the first stage of the screening pathway. Looking to the future, we hope that self-testing will provide the under-screened and never screened with a new option to help address some of the key barriers. 

“This is not a replacement for clinician screening, and we will continue to work with and support those attending their traditional cervical screening, to help make their appointments more comfortable and accessible. 

“The NHS has set a 2040 target for eliminating cervical cancer. We hope that rolling out self-testing will help us reach it.”

Dawn Bryant, 62, from Hertfordshire, had cancerous cells found early thanks to NHS cervical screening and feels extremely lucky that it was detected and treated before the cancer progressed any further.

She says cervical screening may have saved her life and is encouraging other women who haven’t had theirs yet or have put it off, to book an appointment or do the at-home HPV test if invited.

“My nan died of cervical cancer when I was only 11 so I know how difficult it can be and how important cervical screening is.

“A screening test when I was 32 found I had severe high-grade cell changes, and after further testing I was told it was cancer. 

“I am so lucky it was found at an early stage and could be easily treated. I had some surgery to remove the cells, but I didn’t have to have chemotherapy, radiotherapy, or anything. It was a very scary time, but who knows what would have happened if I’d delayed having the test. 

“Since then, I have been regularly monitored, and had many tests and colposcopies, and although they can be a bit uncomfortable, I would not think twice about having them done again.

“I know lots of women who have put off having screening, and sadly, some who have been diagnosed with advanced cervical cancer after putting it off for years.

“It is so important women go for these check-ups or do the home-testing kit if invited. It doesn’t take very long and if you’re worried or have questions, the staff are excellent and will talk to you and help answer any fears you’ve got.”