Care Quality Commission
|Printable version||E-mail this to a friend|
Invisible Conditions Q&A
CQC will host a live Twitter Q&A tomorrow Tuesday, 15 November at 1 pm as part of our upcoming #InvisibleConditions Campaign.
The Q&A will be an opportunity for members of the public listen to the experience of one of our campaign case studies, Nic Vine, discuss his own experiences of care and living with two invisible conditions – Osteoporosis and Meniere’s Disease.
Meniere’s Disease was my first chronic health condition. My first symptoms were around 1990, but very episodic. My clever GP pointed me at the Meniere’s Society (MenSoc), a self-help charity. I didn’t have a formal diagnosis by consultant until 1996 when the episodes of vertigo and tinnitus were more frequent and serious. Looking back, I suppose the health professionals were slow to diagnose, yet equally I was determined to continue my high-pressure working life with 2 young children and through MenSoc I felt informed and supported.
My Osteoporosis story started in 2004 at a ‘well man’ clinic where a heel scan suggested low bone density. Again busy lives and I did nothing until I had a private DXA scan in 2007 which confirmed the case. So I started taking calcium. The health service would do nothing as I had not broken any bones. In 2011 a simple trip onto a pavement fractured 3 ribs, which triggered an investigation and quickly put me onto medication to reduce the bone loss. So once in their remit I was cared for efficiently. However I suffered heart complications from the rib injury which might have been avoided by earlier bone medication. I don’t have any chronic symptoms from osteoporosis, until my spine starts to fracture which will cause pain, mobility problems and eventually breathing and abdominal problems.
I am lucky in that these conditions do not yet constrain my everyday life, in part because I am determined they won’t. My advice to someone just diagnosed with a chronic condition, especially an invisible one as so many are, is threefold: try not to be worn done by it, you are a survivor not a victim; join and get involved with a charity or support group for that condition because the information will help and the support will stop you feeling alone; learn as much as you can about the condition, from trusted sources, so that you can talk to the health professionals about it and feel you have some ownership and control of your care.
Latest News from
Care Quality Commission
How can we assess how well providers review, investigate and learn from deaths?19/06/2017 16:51:00
CQC would like your views on how we can strengthen the way we look at whether NHS trusts learn from deaths to improve the care they provide.
NHS trusts tell their stories of improvement15/06/2017 16:20:00
What do NHS trusts do to turn themselves around? Our collection of case studies on eight trusts – published yesterday – looks at the steps each one took on its own improvement journey.
Engaging and empowering staff is key to driving improvement in hospital care15/06/2017 09:20:00
The Care Quality Commission (CQC) yesterday (Wednesday 14 June) published a report that explores how eight NHS trusts have been able to make significant improvements in the quality of care and improve their CQC rating.
Tell us your views on our next phase of regulation13/06/2017 12:05:00
We're consulting on a further set of proposals which will help shape our next phase of regulation of health and social care in England.