Treating cystic fibrosis
Additional therapy available to NHS.
A new triple therapy treatment will be available to cystic fibrosis patients on the NHS, following an agreement between the Scottish Government, NHS Scotland and the pharmaceutical company.
Kaftrio®, produced by Vertex Pharmaceuticals, is a medicine that tackles the underlying causes of the disease by helping the lungs work more effectively.
Health Secretary Jeane Freeman, yesterday said:
“Cystic fibrosis is an inherited condition, which tragically shortens lives and affects around 900 people in Scotland.
“I am therefore very pleased that a revised pricing agreement has been reached between NHS National Procurement and Vertex Pharmaceuticals, to ensure that Kaftrio®, can be made available for the treatment of cystic fibrosis through the NHS.
“This is a potentially transformational treatment for cystic fibrosis, and I am delighted that patients in Scotland will be among the first in Europe to benefit and lead longer, healthier lives.
“The deal, agreed ahead of a licence being granted by the European Medicines Agency, means that clinicians working in cystic fibrosis treatment centres, will be able to prescribe the medicine to patients whom they consider will benefit from their use as soon as the licence is granted, in the coming weeks.
“I hope that this news will be welcome to many people who live with cystic fibrosis, and also their families and friends.”
It is estimated that around 800 people with cystic fibrosis in Scotland should be suitable for treatment with the range of medicines that are now available.
The terms of the deal also mean that many patients with rare mutations, which fall outside of the scope of the European Medicines Agency’s current licensing considerations, will also be able to benefit from Kaftrio.
Latest News from
International travel testing updated24/09/2021 15:05:00
Testing for inbound international travel is to be eased and will align with the UK following consideration of the logistical, health and economic implications, Cabinet Secretary for Net Zero, Energy and Transport Michael Matheson has said.
Milestone for equality in schools *UPDATED RELEASE*24/09/2021 12:05:00
Scotland has become the first country in the world to embed lesbian, gay, bisexual and transgender (LGBT) inclusive education across the school curriculum.
Child Winter Heating Assistance eligibility extended23/09/2021 12:10:00
Extra money for more than 19,400 disabled children and young people.
Date set for 2022-23 Scottish Budget23/09/2021 10:10:00
Spending plans will be published on 9 December.
Monthly GDP Estimates for July23/09/2021 09:05:00
An Experimental Statistics Publication for Scotland.
Aerospace innovation centre opens in Prestwick22/09/2021 16:30:00
New research and development facility for more efficient manufacturing.
10 million milestone reached for Coronavirus tests22/09/2021 14:05:00
Scottish NHS hubs help bolster capacity.
Supporting the ambulance service21/09/2021 16:25:00
Additional £20 million to address system pressures.