Care Quality Commission
Understanding the impact of coronavirus on autistic people and people with a learning disability
The information that care homes submit to CQC about the deaths of people in their care is published on a weekly basis as part of the Office for National Statistics’s (ONS) reporting on deaths.
We are now doing further work on this data so that we can better understand the impact of coronavirus (COVID-19) on specific groups of people, including autistic people and people with a learning disability.
This work includes analysing all available data on confirmed and suspected coronavrus deaths (as published by ONS) and mapping this against records which indicate whether someone was autistic or had a learning disability. This will also form part of our reporting moving forwards.
This work is a priority for us and will be published as soon as possible. This analysis cannot be based on the number of locations that provide care for autistic people and/or people with a learning disability, as the majority of these services will also be providing other care services for people who are not autistic or do not have a learning disability, or may no longer be providing learning disability services at all.
In response to a request from the BBC we have released figures to show that during the period 10 April – 8 May this year, the provisional number of deaths reported across all settings where autistic people and/or people with a learning disability may live was 3,765 (as compared to 1,370 in the same period last year) – but this absolutely does not reflect the number of deaths of autistic people and/or people with a learning disability, which could be as much as 40 times smaller than this figure once the data on deaths of people who receive other types of care from these providers is separated out.
In independent health settings where autistic or people have a learning disability may live, 129 deaths have been notified to us versus 134 in the same period last year – but again we cannot verify this figure without completing the analysis we are currently engaged in.
The detailed analysis we are currently working on will give a more accurate understanding of the impact of coronavrus on autistic people and/or people with a learning disability. It will do this by separating the data on deaths of people with a learning disability and/or autism from the data on deaths of people receiving other forms of social care so we can understand and report on what the actual figures are and whether or not these are in line with deaths in the wider population.
We are using this information to ensure providers have the support they need to keep people safe; the more detailed the analysis we have - and are able to share with local and national providers - the more effective that support will be.
We are working with ONS who will shortly be publishing a breakdown of all deaths in adult social care by age range supported by CQC data. This will present a more accurate picture of those of working age who have died in adult social care settings specifically.
Providers are also required to inform CQC separately of deaths of people detained or subject to the Mental Health Act (MHA) under Regulation 17. The deaths notified under the MHA are not included in the dataset provided. Read our news story about the publication of those figures for England from last week.
You can read more about the release of information on the ONS website.
Latest News from
Care Quality Commission
CQC report finds ethnic minority-led GP practices "not operating on level playing field"19/01/2022 16:10:00
In February 2021, CQC began work to examine concerns raised by some GPs that ethnic minority-led GP practices were more likely to have a poorer experience or outcomes from regulation than non ethnic minority-led practices.
CQC publishes new survey showing the impact of lockdown on mental health and dignity19/01/2022 15:05:00
New research published today by the Care Quality Commission (CQC) carries a stark message on the challenges faced by health and social care services in England and has highlighted the importance of feedback for improving care
CQC prioritises activity to help create more capacity in adult social care over winter21/12/2021 12:20:00
As many across the health and social care system work incredibly hard to accelerate and deliver the national booster programme we are continuing to keep our regulatory approach under review.
Statement on supporting visiting over the festive season17/12/2021 13:20:00
We know the importance of visiting for many people drawing on care, and their loved ones, particularly over the Christmas and New Year period. As restrictions on care homes have been revised throughout the pandemic, we will continue to monitor the situation and support care homes to implement guidance, to ensure that visiting policies are person centred.
CQC to postpone inspections of acute hospitals and general practice until New Year to support acceleration of booster programme13/12/2021 15:15:00
The acceleration of the vaccine booster programme, announced yesterday in response to alarming new data about the spread of the Omicron variant, will require a massive effort from the NHS which is already under severe pressure. In recognition of this we are postponing on-site inspection activity in acute hospitals, ambulance services and general practice for the next three weeks with immediate effect - except in cases where we have evidence of risk to life, or the immediate risk of serious harm to people.
One year on from Out of Sight – what’s changed?03/12/2021 11:38:00
In our Out of sight – who cares? report, published in October last year we made recommendations to support changes in care for people with a learning disability, autistic people, and people with mental ill health.
Our reply to the Joint Committee on Human Rights about protecting human rights in care settings22/11/2021 15:43:00
CQC have published their reply to the letter from Rt Hon Harriet Harman MP, Chair of the Joint Committee on Human Rights, dated 29 October 2021.
Collaboration and challenge in mental health care for children and young people during the pandemic18/11/2021 10:38:00
In June and July 2021, the Care Quality Commission carried out reviews in seven areas of England to explore how services were working together to support children and young people’s mental health during the pandemic.