27 Jan 2020 12:19 PM

Autism affects the way that someone engages with and experiences the world around them. This note provides an overview of policy issues that are relevant to autistic people and their families. 

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Autistic people process their environment differently to non-autistic people, resulting in relative strengths or difficulties, which can vary across contexts and throughout the lifespan. Autism affects everyone differently and is commonly referred to as a spectrum or constellation. It is thought that at least 1% of the world’s population, or 700,000 people in the UK, are autistic. It is recommended that a diagnostic referral be made within three months of reporting concerns to a healthcare professional, but only 18% of local authorities in England reported meeting this target in 2018. 

Many autistic people have co-occurring conditions. The most common are mental health problems, other conditions which affect the developing brain (e.g. learning disability, and attention-deficit hyperactivity disorder), and health conditions such as sleep problems. Autistic people have a lower life expectancy than non-autistic people and are believed to be at a higher risk of suicide. Interventions for autistic people should aim to improve quality of life and provide an individual with the skills they need to reach their full potential. Interventions for co-occurring conditions, such as anxiety, often work best when they are personalised and adapted for an autistic person.  

Each of the devolved nations in the UK has an Autism Strategy or other autism-relevant policies, which provide statutory guidance for service provision. In England, reports show that there has been little improvement since 2016 on service provision for autistic adults – the two greatest falls in service ratings have been reported in Employment and Service Planning. Autistic people continue to experience poor health outcomes, and are over-represented in figures on unemployment, school exclusions, institutionalised care and the criminal justice system. Research has suggested that improvement of quality of life, and reduction of service costs, could be produced by providing effective and timely support for autistic people and their families. 

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POSTnotes are based on literature reviews, interviews, and consultations with a range of stakeholders, and are externally peer reviewed. POST would like to thank interviewees and peer reviewers* for kindly giving up their time during the preparation: 

*Denotes those who acted as external reviewers of the briefing.