NHS England
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NHS update to learning disability mortality review

Autistic people will now be specifically included in an improved and expanded LeDeR programme to drive improvements in care, the NHS announced yesterday.

The move is part of changes to the learning from life and death reviews programme (LeDeR) which aims to make improvements to the lives of people with a learning disability.

The NHS has worked with stakeholders including bereaved families, people with a learning disability and autistic people over the past 12 months to develop the new policy which will focus not only on completing reviews but on ensuring that local health and social care systems implement actions at a local level to improve and save lives.

The new policy, which looks at the life of a person as well as their death, will also now extend to include all people who are autistic – who do not have learning disability – as well.

All notifications of a person’s death will receive an initial review by the local LeDeR team, which will include talking to their family, their GP or look at the records, and at least one other person involved in the person’s care. If a reviewer feels a more detailed review is needed, a focussed review will follow.

All eligible people from an ethnic minority background will receive a focussed review and the families of anyone aged four and over with a learning disability or autism can request one.

A new web platform will be launched in late Spring to streamline reviews, improve their quality and facilitate access to records as well as improving reviewer training.

From September LeDeR will be incorporated into the routine quality reporting arrangements of the ICS and not sit separately from it, to improve learning and action locally.

Claire Murdoch, mental health and learning disabilities director at NHS England said: “Now in its fourth year, we have a significant amount of data to help improve care for people with a learning disability, and we are committed to ensuring people who are autistic also get the very best care.

“Improving the lives of people with a learning disability involves a range of teams pulling together including the local NHS and local authorities working hand in hand and we are now taking the opportunity to develop and build on the LeDeR programme to drive improvements locally where it will make a difference to patients.

“The new policy developed with experts has patients and their families at its heart, and we are committed to making sure that a person’s life is a focus of any review, as well as their death.”

The policy was developed in collaboration with over 400 people, including people with a learning disability and their carers, bereaved families, commissioners, health and care providers, members of the LeDeR workforce, local authorities, social care providers and voluntary sector organisations, and LeDeR academics and policy experts.

Minister for Care Helen Whately said: “Autistic people and those with learning disabilities deserve the best possible care.

“Including the deaths of autistic people in the LeDeR mortality review is an important step that will ensure the health and care system is learning lessons and working to improve life for people with a learning disability.

“This update will help us to take further strides in eliminating health inequalities and improving the care of hundreds of thousands people with learning disabilities and autism.”

Tim Nicholls, Head of Policy at the National Autistic Society, said: “We welcome this crucial change from the NHS, which brings autistic people within the LeDeR programme and will help make sure lessons can be learned.

“It’s a tragedy for anyone’s life to be cut short, and the NHS must be able to learn from what happened. This is particularly important for autistic people who face unacceptable health inequalities – often because of poor understanding of autism and the best way to support autistic people.

“This change will be vital for the NHS’ efforts to improve care for autistic people.”

Dan Scorer, Head of Policy at the learning disability charity Mencap, said: “LeDeR plays a vital role in identifying potentially avoidable deaths of people with a learning disability, and highlighting the policy changes needed to address the unacceptable health inequalities that so many face. This announcement sets out important changes to make sure recommendations from LeDeR reviews are acted on locally and, ultimately, that future deaths are prevented.”

Background information

Channel website: https://www.england.nhs.uk/

Original article link: https://www.england.nhs.uk/2021/03/nhs-update-to-learning-disability-mortality-review/

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NHS England

NHS rolls out discreet home-testing kits against cervical cancer for millions of women

25/08/2026 13:10:00

Nearly 4 million women will be offered HPV self-testing kits if they have not attended cervical screening appointments following invitations from the NHS in England.

The NHS is starting to roll out the new self-testing kits from today to encourage more women to complete their potentially lifesaving screening to detect human papillomavirus (HPV), which can increase the risk of cervical cancer.

England’s leading women’s health doctor described the move as a “gamechanger” given that around a third of those eligible aren’t up to date with their cervical screening, and this test provides a more “discreet and convenient option” for them.

The self-testing kit contains a swab, similar to a long cotton bud, which is used to collect a sample from the vagina. The sample is then posted back to the NHS for free, where it is checked for high-risk HPV.

If high-risk HPV is found, individuals will be invited to book a follow-up cervical screening appointment at their GP surgery or sexual health clinic, where a nurse or doctor will take a small sample from the cervix to check for cell changes.

Cervical screening helps prevent cervical cancer by checking for high-risk types of HPV. It is a common virus that can cause changes to cells in the cervix. These changes can usually be treated before cancer develops.

Women who are eligible will start receiving invitations today via the NHS App, text message, email or letter, and once invited they will be able to order a free kit through the NHS App or their NHS online account.

This is the next major step the NHS is taking in its pledge to eliminate cervical cancer by 2040, by making it as easy as possible for people to get the lifesaving HPV vaccination and increasing cervical screening attendance.

Dr Sue Mann, National Clinical Director for Women’s Health at NHS England, said: “Screening saves thousands of lives each year by preventing cancers and catching them earlier, but only around two-thirds of women are attending cervical screening appointments when invited by the NHS.

“Offering millions of women an alternative test they can do from the comfort of their own homes will be a gamechanger – making it easier than ever for them to get tested for HPV. 

“There are lots of reasons that may stop women from getting their cervical screening – embarrassment, lack of time, or worries about discomfort – and these kits provide a discreet and convenient option we hope will encourage more women to take up the life-saving test. 

“So, if you’re invited to take part, please order a test – it’s a simple swab you can do at home in minutes.”

Cervical screening appointments with a clinician remain the best way to help prevent cervical cancer, but HPV self-testing is being introduced by the NHS as an additional choice for people who have not taken up previous invitations.

HPV self-testing is an invitation-only offer and is being rolled out in phases across England as part of the NHS Cervical Screening Programme, starting with those aged between 30 and 65, who have not attended cervical screening following previous invitations.

The national rollout comes on the back of the YouScreen trial run by North London cancer alliances in collaboration with NHS England and King’s College London in 2021, which found offering self-testing kits to under-screened women at their GP practice or at home could boost the numbers screened in England by about 400,000 each year.

The UK National Screening Committee used evidence from this trial in its recommendation to roll this out wider.

The latest figures show that 68.8% of eligible women were up to date with their cervical screening – below the NHS England target of 80%. This means around 4 million women in England are not up to date with their routine check-up.

Women aged 24-64 are invited for cervical screening by the NHS every five years, or more frequently if HPV is detected.

Anyone who has been invited for cervical screening can still book an appointment at any time, even if the invitation was sent months or years ago.

It is still important to attend cervical screening appointments if you have been vaccinated against HPV as the vaccine does not provide protection from all types of HPV, so there is a still a small chance of getting cervical cancer.

People who routinely attend for a cervical screening test with a clinician at their GP practice or sexual health clinic should continue to book their appointments as normal.

Health and Social Care Secretary Yvette Cooper said: “Cervical cancer is preventable – but that’s why we want to make it as easy and convenient as possible for women to keep up with their screening.

“These free self-testing kits will be offered to four million women who are currently behind on their screening to make it easier for as many women as possible to keep themselves healthy and safe.

“This is the future NHS we are building – there for all of us when we need it, and acting as early as possible to stop preventable deaths.”

Cancer Research UK’s Chief Executive, Michelle Mitchell, said: “Cervical screening is a powerful tool that saves lives – it can prevent cervical cancer or spot it at an earlier stage when treatment is more likely to be successful. 

“While it’s best for cervical screening to be done by a nurse or doctor, there are barriers that make it challenging for some people to attend. At-home HPV self-testing kits will help more people take part in a way that works for them.

“If people receive their cervical screening or self-testing kit invitation, please consider taking up the offer and encourage loved ones to do the same. Beating cervical cancer means beating it for everyone, and this move brings us closer to that goal.”

Athena Lamnisos, Chief Executive Officer at The Eve Appeal, said: “There are many reasons why those eligible for cervical screening don’t attend.

“Challenges around the type of test it is, limited awareness around HPV and its role in cancer development, as well as practical barriers such as problems around booking and attending an appointment, stop many from going.

“Cervical screening is designed to prevent cervical cancer rather than respond to symptoms, attending a clinic requires people to actively prioritise an appointment among the many competing demands of everyday life.

“Self-testing which can be done at home will be a step-change for many. We have the incredible opportunity to see the back of cervical cancer. How brilliant would that be? But to achieve this, we need to support everyone eligible to attend screening.

“At Eve we welcome the rollout of this programme and its focus on the audiences who need it most in the first stage of the screening pathway. Looking to the future, we hope that self-testing will provide the under-screened and never screened with a new option to help address some of the key barriers. 

“This is not a replacement for clinician screening, and we will continue to work with and support those attending their traditional cervical screening, to help make their appointments more comfortable and accessible. 

“The NHS has set a 2040 target for eliminating cervical cancer. We hope that rolling out self-testing will help us reach it.”

Dawn Bryant, 62, from Hertfordshire, had cancerous cells found early thanks to NHS cervical screening and feels extremely lucky that it was detected and treated before the cancer progressed any further.

She says cervical screening may have saved her life and is encouraging other women who haven’t had theirs yet or have put it off, to book an appointment or do the at-home HPV test if invited.

“My nan died of cervical cancer when I was only 11 so I know how difficult it can be and how important cervical screening is.

“A screening test when I was 32 found I had severe high-grade cell changes, and after further testing I was told it was cancer. 

“I am so lucky it was found at an early stage and could be easily treated. I had some surgery to remove the cells, but I didn’t have to have chemotherapy, radiotherapy, or anything. It was a very scary time, but who knows what would have happened if I’d delayed having the test. 

“Since then, I have been regularly monitored, and had many tests and colposcopies, and although they can be a bit uncomfortable, I would not think twice about having them done again.

“I know lots of women who have put off having screening, and sadly, some who have been diagnosed with advanced cervical cancer after putting it off for years.

“It is so important women go for these check-ups or do the home-testing kit if invited. It doesn’t take very long and if you’re worried or have questions, the staff are excellent and will talk to you and help answer any fears you’ve got.”